Bella after surgery, finally fresh air!!
The talking french Dora toy, and her favorite...kleenex's!
Bella after surgery. Those are no no's or arm splints so she doesn't' pull our her tubes:(
As you all know, Bella has had tummy issues since Jan 09. Finally this past Oct. a feeding therapist suggested to her pediatric GI Dr. that Bella had something physically wrong and it was preventing her from getting enough volume when she ate. So after me crying to the GI doctor that something was really wrong with my daughter, they finally ordered a MRI which showed possible malrotation because they could see a artery in the wrong spot. So the next day Bella had her 3rd upper GI and confirmed malrotation of the gut, meaning her bowels were not in the right place. Same thing Mitchial had when he was 2 1/2. We were scheduled for surgery on the 27th of Oct. No one could believe that there was 2 in the same family with this problem.
I had mixed feelings for the surgery, I wanted her fixed badly but didn't want to see her suffer and recover from surgery.
The surgery went well. Bella came out with not only a 2 1/2 inch incision on her tummy, but with two tubes in her nose, one for draining her gut and another placed through the bowels to hold it in place till scar tissue could form. They put arm splints on before we even got to see her because she immediately started pulling at the tubes(I can't blame her). Well we tried giving her arms a break from the restraints and she did great for 3 1/2 days. Early morning on the 4th day I woke up to her NJ tube half way out. Aaaggghhh All the nurse could say was "oh this isn't good". Not only was that tube in place for holding her insides where they should be, but it was going to be used to feed her. Hopefully scar tissue formed enough that her insides don't move out of position again.
Anyway after they placed a picc line(a "iv" that runs from her arm vein to the top of her heart)
they started giving her "liquid" nutrition. After many many long days we were finally able to feed her and she did great. So the end to a all too long story, sorry, we are home and she is eating like crazy. It is amazing what unkinking your bowels does. So far she has had a night where she slept for 6 hours, that has never happened in all her 13 months:) Thanks for all your prayers.
they started giving her "liquid" nutrition. After many many long days we were finally able to feed her and she did great. So the end to a all too long story, sorry, we are home and she is eating like crazy. It is amazing what unkinking your bowels does. So far she has had a night where she slept for 6 hours, that has never happened in all her 13 months:) Thanks for all your prayers.
7 comments:
We are thankful she is doing better. She looked great last we saw her. Liz thought it was fun to see you and her at work too. You know its just pay backs for making fun of me all those times. ;) Glad things are getting better.
I am sooo glad she is feeling better. Now she will have the strength to fight off her older brothers. We need to get together soon!
Yay! We have been thinking about you and praying for you guys! We are so glad she is doing so well. Glad to hear she is eating!! Hopefully we'll see you at thanksgiving. Bella needs a photo shoot too ;)
Beautiful Bella! I am so glad you all made it through another long week, Jill! We have been praying for Bella every day (especially Thorin, who seems to think her name is "Little Bella")! I am so glad Bella is feeling better. I wish I was there to feed her lots of cookies! Jill-you are an EXCELLENT Mother. Sometimes you just have to tell a Doctor what to do and you did it!! Take care!
Oh, little Bella, I'm glad she is doing better! What a hard thing for her and her parents to go through.
When we were at the lab in Primary's, I overheard people talking about the pre-op work their little one was getting and was so thankful Elizabeth wasn't being prepped for surgery. Then I'd remember poor Bella upstairs recovering from her surgery. I can't imagine watching one of my children go through that. I'm glad things went well and that she's recovering quickly. Oh and we're really grateful to the Guy Stones family for taking all the major medical problems for the rest of us Stones:) j/k
I have been thinking and thinking about you! I'm so glad everything is getting better. Melissa and I should steal you and Bella away for a girls day!!
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