Bella after surgery, finally fresh air!!
The talking french Dora toy, and her favorite...kleenex's!
Bella after surgery. Those are no no's or arm splints so she doesn't' pull our her tubes:(
As you all know, Bella has had tummy issues since Jan 09. Finally this past Oct. a feeding therapist suggested to her pediatric GI Dr. that Bella had something physically wrong and it was preventing her from getting enough volume when she ate. So after me crying to the GI doctor that something was really wrong with my daughter, they finally ordered a MRI which showed possible malrotation because they could see a artery in the wrong spot. So the next day Bella had her 3rd upper GI and confirmed malrotation of the gut, meaning her bowels were not in the right place. Same thing Mitchial had when he was 2 1/2. We were scheduled for surgery on the 27th of Oct. No one could believe that there was 2 in the same family with this problem.
I had mixed feelings for the surgery, I wanted her fixed badly but didn't want to see her suffer and recover from surgery.
The surgery went well. Bella came out with not only a 2 1/2 inch incision on her tummy, but with two tubes in her nose, one for draining her gut and another placed through the bowels to hold it in place till scar tissue could form. They put arm splints on before we even got to see her because she immediately started pulling at the tubes(I can't blame her). Well we tried giving her arms a break from the restraints and she did great for 3 1/2 days. Early morning on the 4th day I woke up to her NJ tube half way out. Aaaggghhh All the nurse could say was "oh this isn't good". Not only was that tube in place for holding her insides where they should be, but it was going to be used to feed her. Hopefully scar tissue formed enough that her insides don't move out of position again.
Anyway after they placed a picc line(a "iv" that runs from her arm vein to the top of her heart)
they started giving her "liquid" nutrition. After many many long days we were finally able to feed her and she did great. So the end to a all too long story, sorry, we are home and she is eating like crazy. It is amazing what unkinking your bowels does. So far she has had a night where she slept for 6 hours, that has never happened in all her 13 months:) Thanks for all your prayers.
they started giving her "liquid" nutrition. After many many long days we were finally able to feed her and she did great. So the end to a all too long story, sorry, we are home and she is eating like crazy. It is amazing what unkinking your bowels does. So far she has had a night where she slept for 6 hours, that has never happened in all her 13 months:) Thanks for all your prayers.
